ALS Society of BC
The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of Life possible while living with ALS. Through assisting research, we are committed to finding the cause of, and cure for, Amyotrophic Lateral Sclerosis.
Our Equipment Loan Program is designed to help people cope with the daily challenges of decreasing mobility and independence, through obtaining basic and essential assistive equipment. This includes mobility equipment, lift equipment, beds & accessories, communication devices, and bathroom aids if needed. All equipment loaned is available at no charge to registered ALS patient members.
Support groups provide an open, friendly and safe environment for ALS patients, family members, caregivers and friends to discuss issues related to living with ALS. Groups are facilitated by experienced volunteers.
Psychological treatment services are available free of charge at locations across BC. Registered Psychologists and Clinical Counselors provide much-needed therapy and counselling to ALS Patients, their families and caregivers at any stage of the illness. Services will be provided throughout the disease and up to one-year following.
Held every Fall in communities around BC, Caregivers Day is a chance for the full-time primary caregivers of ALS Patients to have a day of respite. This event allows for people who devote themselves to the care of their loved ones to come together and share experiences. It also provides the opportunity to learn how to take better care of themselves and how to cope with grief.
In July or August, ALS BC hosts a camp for youth who have a Parent (or Grandparent in a significant role) Living with ALS. ALS BC is extremely pleased to be able to offer this weekend retreat at no cost to families. Camp Alohi Lani, which means ‘Bright Sky’ in Hawaiian, is a safe setting in which youth aged 8-17 years can come together and receive support for their own journey. Most importantly Camp Alohi Lani offers campers an opportunity to meet other youth from across BC and make connections with peers.
The primary purpose of forming a Care Connection is to reduce caregiver responsibilities and reduce the worry the person with ALS has about their caregiver. By caring for the caregiver, the person with ALS is helped as well. The ALS Society of BC’s Care Connection is a program to aid your own group of caring family and friends to help their loved ones with ALS and their caregivers.
In partnership with Vancouver Coastal Health and the ALS Centre @ GF Strong Rehab Centre, the ALS Society of BC provides Mobile Clinics to outlying communities. ALS Centre healthcare professionals and an ALS Society of BC representative travel to clinic locations to provide follow-up appointments for people challenged to travel.
All that is required to access these programs is the patient’s registration with ALS Society of BC. No fees are charged. Services available to people living with ALS in British Columbia and the Yukon.